Trikafta® (elexacaftor/tezacaftor/ivacaftor) is a new is a triple combination therapy that may benefit many people living with CF. Trikafta® is on the agenda for the March 2021 PBAC meeting for the treatment of CF in patients aged 12 years or older who have at least one F508del gene change.
The Disability Royal Commission was in response to community concern about widespread reports of violence against, and the neglect, abuse and exploitation of, people with disability. Anybody can make a submission. It will It will investigate and report on experiences and conditions in all settings and contexts, including schools, workplaces, family homes, and hospitals.
Join our amazing team! Cystic Fibrosis Community Care is a community organisation working across Victoria and NSW, which supports people with cystic fibrosis (CF), their families and carers. Our mission is to improve the wellbeing and quality of life of people living with cystic fibrosis, and promote broader awareness of cystic fibrosis and how it affects… View Article
Cystic Fibrosis Community Care would like to give a huge thank you to Newcastle Permanent Chartable Foundation for their support and generosity with the Breathe Better 2 Program! Together, we have been able to provide 82 pieces of essential nebuliser and nebuliser replacement parts and helped 71 people access fitness equipment or fitness support. We… View Article
Register now and get your friends and family members to be part of this iconic event! Help raise much-needed funds for cystic fibrosis! In Victoria, most of us have been in lockdown with only a limited time to enjoy the start of spring in Melbourne, while in NSW, things have been a bit more relaxed…. View Article
When it comes to celebration, where there’s a will, there’s a way. In the time of the Great Depression, families hosted ‘potluck’ dinner parties as a way to remain connected, proving that a global crisis was not going to stop a party. This is why Cystic Fibrosis Community Care is working so tirelessly to plan… View Article
One of the hardest parts about COVID-19 is not being able to participate in activities we love like before. As the coronavirus crisis continues, schools everywhere are struggling to keep children healthy and connected.
Your feedback on what we do is highly valued and appreciated, so in addition to our regular ways of providing feedback, we have two ways that you can be involved and share your experiences and thoughts – focus group interviews (conducted via video conference) and an online survey.
Cystic Fibrosis Community Care is working to keep everyone in our community safe during the COVID-19 (coronavirus) pandemic. We have compiled a list of up-to-date resources on websites for you to visit, depending on what questions you might have.