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Cystic Fibrosis Community Care provides equipment, subsidies, and financial assistance for a range of CF-related expenses to individuals and families living with CF throughout NSW and Victoria.

All our programs are available in both NSW and Victoria unless otherwise mentioned. To be eligible to receive our programs and services, you must be a current member of Cystic Fibrosis Community Care.

Please note that due to funding arrangements, some of our programs may be once-off programs or may have a closing date. Some funding bodies who support these programs may also require people to provide certain information such as proof of purchase so that we can acquit the grant.

For more details, or to refer yourself or family for any of our services, please contact us on:

Image of nebulisers
I need a nebuliser, PEP device, or replacement parts

Physiotherapy Equipment Program

Our Physiotherapy Equipment Program provides subsidies to for members who have CF who need to purchase essential physiotherapy equipment to help manage their CF. This includes nebulisers, PEP devices, replacements parts, masks, etc.

For more information:

Equipment loan program

Our Equipment Loan Program enables members who have CF to borrow medical and physiotherapy equipment. Equipment available to borrow includes:

For more information:

I have paid for fitness activities and/or sport memberships (VIC)

Our Fitness Participation Program provides subsidies for members in Victoria in Victoria who have CF to participate in the sport of their choice and to help improve lung function and overall health. This includes gym memberships, sporting fees and sport and exercise equipment.
Applications for 2021 will close 1 December 2021 (or earlier if all grants have been distributed)

For more information:

 

I have CF-related expenses like medications, hospital parking or other costs relating to CF

Our CF-Related Reimbursement Program assists members who have CF and their families by reimbursing some of their CF-related expenses. This includes expenses such as CF-related medications, supplements, hospital parking, and other expenses.
Applications for 2021 will close 1 December 2021 (or earlier if all grants have been distributed)

For more information:

 

I am heading to hospital or my CF clinic

Accommodation assistance for regional families

Our Accommodation Assistance Program subsidies, and can book, accommodation for members who have CF and who live in regional areas, so they can have the support of their immediate family while attending appointments or hospital stays in Melbourne or Sydney.

For more information:

You may also be able to access support through state government patient transport assistance schemes, such as Victorian Patient Transport Assistance Scheme (VPTAS) or the NSW Government Isolated Patients Transport and Accommodation Assistance Scheme.

TV hire for hospital stays (VIC)

Our Television Hire Program subsides the cost of television hire while Victorian members are in hospital for CF-related issues. To obtain the subsidy, members at The Alfred and Monash Medical Centre will need to show their current membership card to the TV company staff when admitted to hospital.

For more information:

 

I need help with telehealth (VIC)

Do you need technology to get yourself or your child set up for telehealth appointments (online medical appointments)? If you are an adult with CF or parent of a child living with CF, we can provide up to $300 in telehealth equipment (e.g. laptops, headphones, keyboards, mouse, internet packages). We will work with your hospital team to make sure you have the correct equipment to access your online appointments.

This is only available to Victorian members and you must be experiencing financial hardship to access this program.
Applications for 2021 will close 1 June 2021 (or earlier if all grants have been distributed).

For more information:

 

I’d like to attend the Australasian CF Conference

This year’s Australasian CF Lay Conference will be a virtual conference on the weekend of 7-8 August. CFCC members may be eligible to apply for a reimbursement of up to $50 for the cost  registering and attending the Lay Conference.

For more information:

 

I have had a CF-related transplant

Our Transplant Assistance Program provides support to our members who have CF and have recently had a CF-related transplant. This assistance aims to help relieve some of the financial stress while people recover and get back on their feet.
Applications for 2021 will close 1 December 2021 (or earlier if all grants have been distributed).

For more information:

 

My child needs assistance with their education

We work with school children and families to ensure that all children with CF can have the best learning opportunities and experiences while managing their CF. We do this through providing information, support and advocacy for students living with CF.

CF Study Support: Volunteer Tutor Program

Our CF Study Support: Volunteer Tutor Program provides free tutoring for school-aged children with CF who are members. Tutoring helps students become independent learners, providing them with the skills needed to succeed in school. Tutoring is not just about doing better academically. There are many benefits to working with a tutor, such as improved work and study habits, increased confidence and attitude, or improved social and behavioural skills. Whether your child is falling behind in school due to absences, or they could benefit from further extension, some free sessions with a volunteer tutor may be just what your child needs to help them achieve their best at school. Tutors are available to work in person or online.
In collaboration with Catch the Clouds.

For more information:

Scholarship program (VIC)

Our Scholarship Program provides assistance to members in Victoria who have children under 19 years with CF to help cover costs related to their school education or ‘alternate educational pathways’ (such as educational courses, services or equipment).
Applications for 2021 will close 1 December 2021 (or earlier if all grants have been distributed)

For more information:

 

I’m struggling financially and I need extra assistance

Our CF-Related Emergency Assistance Program provides members who have CF with emergency financial assistance for urgent CF-related needs at times of crisis, during lengthy hospital admissions or following sudden changes of health for people and families on a low income.

For more information:

You may also be able to access support through Centrelink and other organisations.

 

My family/I need a break or holiday

Holiday cabin

We have a holiday cabin in Corowa for hire to members at reduced rates.  It can be booked for a maximum of seven nights per stay and bookings can be made up to three months in advance. It sleeps a maximum of six guests (one double bed and two sets of bunks).

The cabin is located in in the Ball Park Caravan Park, Bridge Road, Corowa NSW 2646

For more information:

Take A Break Program (NSW)

Our Take A Break Program supports members in NSW who have CF to get away and have a break. The program is generously funded by Matt’s Legacy.
Applications for 2021 will close 1 December 2021 (or earlier if all grants have been distributed).

For more information:

Take A Break Program (VIC)

Our Take A Break Program supports members in Victoria who are aged 21 years or older and have CF to get away and have a break. The program is generously funded by Andrew’s Legacy. Andrew Carr passed away in 2008, and it was his wish that his family and friends donate money in lieu of flowers to fund the program. Andrew wanted other adults living with CF to enjoy quality time away from the ‘hum-drum’ of life – something he and his wife Melissa found so valuable. Andrew’s family and CF Community Care are grateful to all who have contributed and continue to contribute to Andrew’s Legacy.
Applications for 2021 will close 1 December 2021 (or earlier if all grants have been distributed).

For more information:

Simon’s Adventure Fund

Simon’s Adventure Fund has been generously established by Simon Minson’s family. Its aim is to enable people aged 18 years and over who have CF to participate in an activity on their bucket list. It may be something that pushes the boundaries or it may be something that seems a little crazy. Simon was always up for an adventure. He snowboarded, skydived, bungy jumped, shot down rapids, dived with sharks, was a keen trail bike rider, got dangerously close to a brown bear in the wild, loved being behind the scenes at the zoo and played footy against guys twice his size!

He chose to live his life to the full with adventures large and small. Simon died in 2014 from complications due to his CF while on one of these adventures with his mates in Vietnam. Simon’s family want people with CF to live life to the full and so they have established Simon’s Adventure Fund to assist others to experience their own adventure.

Applications for 2021 will close 1 December 2021 (or earlier if all grants have been distributed).

For more information:

 

Create and Connect (VIC)

Do you like to draw or paint? Are interested in learning how to make dream catchers or homemade dumplings? We can help you do that.

Our Create and Connect program supports members in Victoria who are aged over 16 years old and living with CF (and another person – a friend or  family member) to participate in an online creative workshop of your choice and connect with others at the same time.

Whether you want to revisit an old hobby or learn something new you can take some time to do participate in a fun activity while connecting with others.

Applications for 2021 will close 1 June 2021 (or earlier if all grants have been distributed).

How to apply: