Who we are

Cystic Fibrosis Victoria (CFV) was founded in 1974 by a group of parents of children with cystic fibrosis and became an Incorporated Association in 1984.

In 2017 CFV became known as Cystic Fibrosis Community Care as we believe this more accurately reflects our fundamental role, caring for our community. Shortly after our name change, Cystic Fibrosis NSW merged with CF Community Care to become one organisation that represents the interests of people living with CF and the CF community across Australia’s two largest states by population.

In the public sphere, CF Community Care is recognised as a public benevolent institution and is governed by a board of directors composed of representatives of people from the CF community and others with particular expertise in advancing our mission and vision of ‘lives unaffected by CF’.

We provide advocacy, support and information services to people living with CF and their families. We also conduct awareness programs for the general public and fundraise to support service provision to families and adults living with CF, and to promote CF research.

As a not-for-profit charitable organisation CF Community Care relies heavily upon the generosity of the Victorian and NSW public as well as private donors and philanthropic sources. Only 20% of our income is provided by various levels of government.