In your late teenage years, your CF clinic would have worked with you to transition your care to an adult CF centre. As an adult, you are now responsible for your treatments and you call the shots.
It’s important to have a good working relationship with the medical professionals at your CF clinic. The doctors, nurses and allied health practitioners at your clinic are your first port of call for any medical questions that arise.
You will also have your own opinions and questions about your medical care, and it’s important that your CF team allows you to have input into making decisions about care. Forming a close and productive working relationship with the clinic team can be one of the most important things you can do for the ongoing management of your CF.
Find out more about making your voice heard and advocacy
The basics of treatment remain the same as when you were a young child, but now it’s your responsibility to ensure that you follow the prescribed treatment. Airway clearance, exercise, nutrition and medications will be personalised for you by your health care team and adherence to their recommendations will help you maintain the best possible health.
Taking care of your mental health
Good mental health is an important part of treating CF, both for people living with CF and the people around them. Mental health impacts on physical health, and conversely physical health also affects mental health. You can’t treat one in isolation from the other.
Share your feelings with someone you trust, and don’t be afraid to show your emotions. Be aware that difficult events may set off memories, sadness and anxiety.
It’s normal to experience feelings of anxiety or depression. It’s also important to ask for help and talk about how you are feeling. Tell people who offer to help exactly what you need – a shoulder to cry on, a helping hand, or making meals. Don’t be afraid to ask for help or accept it as it comes.
Cystic Fibrosis WA has produced a wide range of fact sheets that cover different aspects of managing your CF, which can be found on their website:
- Nutrition and Cystic Fibrosis: A Guide for Adults
- CFBites: Snacks and Meals for those with Cystic Fibrosis
- Bone Health
- Cystic Fibrosis Related Diabetes