Talking about CF

It’s your decision whether to tell other people that you have CF. If you don’t want to disclose your CF to others then that is up to you.

Provided you are comfortable doing so, in some cases it’s useful to let people know about your CF, such as your educational institution or your employer. But the people you tell shouldn’t disclose your CF to other people unless you are happy for them to do that.

If you choose to tell your friends about your CF, then a good friend will be interested in finding out more about CF. That doesn’t necessarily mean that they need to know every tiny detail about your treatments or your symptoms, but a good friend is interested in you as a person and wants to know what makes you tick.

Sharing your CF story can help create even better friendships. You will be opening your friend’s eyes to a condition they probably knew little about. By sharing your challenges with them, you’re bringing them into your confidence and forming closer bonds.

Dating with CF raises the complex question of when do you bring up the fact that you have CF to your boyfriend or girlfriend. Some people advocate doing it on the first or second date, but when you do is up to you. In an article about dating with CF on the Cystic Fibrosis Foundation blog, one young person living with CF acknowledged that “CF complicates finding ‘the one’ beyond what the majority of my friends have had to deal with. I can’t think of a single stage of any relationship that I’ve had where this disease hasn’t played a major role. The most common question I get on this topic is, ‘When do you tell them?’ ”