Cystic Fibrosis Community Care
What is CF?
Cystic fibrosis is a life-limiting genetic condition affecting 3,500 Australians. There is no cure but advances in treatment and care are helping people to better manage their CF.
CF Community Care provides more than 20 programs and support services to people living with CF in NSW and Victoria. From financial assistance to advocacy, from education support to equipment loans, and lots more.
Living with CF
Cystic Fibrosis Community Care provides support, advocacy and information to the CF community, promotes awareness of CF, and funds medical research into the fight against CF.
It takes a community to care for CF. For 45 years we have been providing vitally-needed support to children, families and adults. We are a not-for-profit, membership-based organisation.
Notice is hereby given that the Annual General Meeting (AGM) of Cystic Fibrosis Community Care Ltd (CFCC) is to be held on Wednesday 17th March, 2021 at 6-30pm.
Trikafta® (elexacaftor/tezacaftor/ivacaftor) is a new is a triple combination therapy that may benefit many people living with CF. Trikafta® is on the agenda for the March 2021 PBAC meeting for the treatment of CF in patients aged 12 years or older who have at least one F508del gene change.
Life with CF changes when you become an adult. The modern facilities, the Starlight Room and Clown Doctors become a distant memory as adult life arrives. CF Strong aims to bring back some warmth to the big kids, and to strengthen the adult community by enabling shared knowledge, advice and support.