Project CF Strong for adults

Life with CF changes when you become an adult. The modern facilities, the Starlight Room and Clown Doctors become a distant memory as adult life arrives. CF Strong aims to bring back some warmth to the big kids, and to strengthen the adult community by enabling shared knowledge, advice and support.

CF Strong is a one-stop shop for adults with CF. It will be an online information portal and interactive platform, designed and built for adults and their key networks (such as family, tertiary providers, employers and sporting clubs). We aim to provide a platform for all Australian adults to share and gain information on key life transitions, social, emotional and medical issues.

As a result, the project will primarily be driven by the needs and wants of CF adults, giving further control and clarity over decisions.

Project update

The website is underway and we want to hear from you!

We recently advertised our current project CF Strong, which focuses specifically on building a knowledge hub for adults with CF and their support groups. We have established our Reference Group, which comprises of eight adults with CF, representing most Australian states and territories. This ensures we achieve our goal of a national voice.

Our creative agency has begun building the website framework. This is based on our design brief – a simple, yet sophisticated information platform that will support multiple media platforms including video, podcasting and articles.

We’ve started compiling content on travelling, transitioning clinics, emotional wellbeing, transplantation, fertility and reproduction, parenting, studying and careers. If you are interested in providing insight into any of the above topics, or you would like to be involved in a podcast or video interview, we’d love to hear from you!  Please email us at projects@cfcc.org.au with your preferred topics and media type.

Remember this project is about educating teens who are becoming adults, and those who are well into adulthood. The more insight we have from you, the better information we can provide others.